Dyslexia runs in family trees
Dyslexia is genetic. It runs in family trees. So if you see the warning signs in your child, you may also start to identify other people in your family who have it, as this parent shared.
I just watched your on-line video which had so many “ah-ha” moments in it. You might as well have used our son’s name, Sam. Sam has every symptom you described. I feel like you know him personally, and finally, there is someone who understands him.
I have to give credit to his reading tutor, as she is the one who warned us that he “may” have dyslexia.
I now understand my mother better. She’s one of those who gets tongue tied when saying multi-syllable words, hates to write (and no one can read her handwriting), is a terrible speller, skips over the big words when reading, did not learn to talk until age 3, struggled in school – even though she is a very bright and creative person who thinks outside the box, gets lost easily, cannot remember left from right, and the list goes on and on.
And I think I have a mild case of it as well. It bothered me that I was always in the lowest reading group in my class, and that I had to re-read things 2 or 3 or 4 times to understand them.
I even took a speed reading course in high school to try to improve my ACT college prep results – because there was such a big difference between my reading test score and all of my other scores. But the speed reading course did not help my reading score at all. Now I know why.
To watch that dyslexia video, click on this link:
http://www.dys-add.com/videos/dyslexiaSymptomsSolutions_Part01.html
The problem with “Third Grade Guarantee” laws
Many states have recently passed, or are working on, a “Third Grade Guarantee” law, which includes mandatory retention for third graders who do NOT pass the reading portion of the end-of-year statewide exam.
Pam Collier, a parent in Ohio, gave me permission to share her email that explains why that law is as bad for students withOUT dyslexia as it is for those who do have dyslexia.
From: Pam Collier
Date: August 19, 2014
Subject: Third grade guaranteeDear Superintendent of Public Instruction at the Ohio Department of Education:
I am writing out of concern for my three children and Ohio’s Third Grade Guarantee. I have three very different children, and the guarantee will effect each of them differently.
First, I have a 10 year old daughter who is accelerated. She has tested in the gifted range on her Terra Nova, and has scored well above the cutoff of the guarantee scoring — in the Accelerated range for math and reading.
Now you are probably wondering how the guarantee could have any effects on this student. Actually, it has had a huge impact. My daughter spent her entire third grade year being “taught to the test.”
Teachers are terrified of poor test scores which negatively impact their evaluations. Instead of challenging bright young minds, the system is telling these students, “We don’t care whether you have a special gift. We just need you to do well on this test.”
My daughter was afraid of failing the test because teachers are creating so much anxiety and placing way too much pressure on our students.
Now, I have a second daughter who is a twin. She is 7 years old. Because she is a twin, I started to notice differences in her learning very early. At the age of 4, I began asking if she was dyslexic, citing she was having trouble remembering letters, numbers, rhyming, etc. I was assured that she was fine, and that her twin (my son) was just advanced.
Fast forward to kindergarten, and first grade. I asked the same questions.
In my gut, I knew I had to do something. So I pursued outside professional testing for my daughter. She was diagnosed with dyslexia, attention deficit disorder, and a visual processing disorder.
We tried getting help through the school on several occasions, and were told, “We don’t do one-on-one tutoring, we don’t have the funds for that, we don’t have anyone trained to provide the remediation your daughter needs.” So I hired an Orton Gillingham tutor who was recommended by the International Dyslexia Association.
Now, because she is not on an IEP, she is not exempt from the guarantee. Not exempt!
A child with dyslexia, a visual processing disorder, and attention deficit disorder is not exempt from retention because of a single test? A child whose parents are paying over $5,000 a year to a private tutor because her public school cannot meet her needs? A child who was not identified by the school, but was identified because her parents paid for private testing?
A child who works 5 times as hard as a student without dyslexia to learn, who is also working outside of school with a private tutor, may be retained because of a single score on a single test on a single day, in a single year?
Now, mind you, if she should fail and be retained, the state has mandated that she receive remediation “from a qualified instructor, trained in the remediation of students with a disability in reading, from a program that is approved by the state board of education.” This, from the same school system that said, “We don’t have the time, funds, or individuals with training to help your daughter.”
The same school system that told my husband and I that our goals “were too high” for our daughter. Our goals were that she meet the same benchmark as her non-disabled peers by the end of her second grade year. Our goals were too high? That is what we were told. We are being told that we should not hold our daughter by the same standards due to her disability, yet she will be held to the same standard when taking the OAA.
The Third Grade Guarantee is not serving our children’s needs. Research has shown that retention will lead to higher dropout rates. Teaching to the test is devaluing our greatest young minds. We need to have teachers who can challenge our most gifted students, and specialists who can remediate our students with learning disabilities.
We are doing the very best we can for our daughter. My husband and I are both professionals, and we know what is working for her. What recourse will we have if our bright daughter with dyslexia, a visual processing disorder, and attention deficit disorder, fails the OAA? She will get held back for what purpose? To receive the “extensive remediation” she is already receiving privately?
Why is it a mandate to retain some of our brightest individuals based on a single test?
Why are charter schools not held to the same standards?
Why do public school students have to undergo more than a dozen standardized tests, while private school students do not?
When will educators from the Ohio Department of Education realize that retention is not the answer?
Sincerely,
Pamela Collier
Sports
I get emails like this all the time, and they always bring me to tears.
When I heard you speak on Thursday, I cried. I wish I had that information when we began our journey.
My 17 year old son, David, is dyslexic. He was diagnosed when he was 8, and he has had lots of tutoring at Sylvan and from retired Reading Specialists over the years, which has helped a little bit.
David is a really smart, handsome, and well-liked young man. He hides his dyslexia well. Yet it is still there. After your presentation, I asked him, “What letter comes after S?” He quickly responded, “R.” I shared that was “before,” not after. He then said, “I know what you’re doing. Don’t even ask me about the months of the year.”
When he played PeeWee football, he always wore a wristband so he could tell left from right.
David recently gave directions to our house to his new girlfriend. But he frequently told her to turn left instead of right. After 45 frustrating minutes, he finally handed me the phone and begged, “Please get her here.”
He is a gifted athlete and would like to play football in college. But his grade point average is only 2.65 due to his failing French (a D) and algebra (also a D). He must also pass the ACT (college entrance exam). We paid for an ACT prep course, but after the course, he only scored 13. He needs at least a 17.
He needs extra time on the reading portion, and he dreads math. He was so nervous because he knew he was not going to have enough time to finish the test. How do I go about getting him more time on the ACT?
He feels he is not smart enough to make it in college. The many days of sitting in the hall, being put in “the dumb class” (as he called it), and being teased by his peers does not go away.
But I want him to be able to follow his dream. I do not want him to join the military, which is his backup plan.
Never stop doing what you’re doing
This private Facebook post from an adult shares the trauma of going through school without the right type of help — far better than I can.
I just wanted to say thank you for all of the work you are doing for kids with dyslexia. I just finished watching Embracing Dyslexia. You were in it, and I liked what you said.
I was one of the unlucky ones. In the 80’s, they had no idea what was wrong with me. I did not hear the word dyslexia until I was in junior high. By then, I was fighting the best I could just to keep up.
My home life was not great. There was no caring or support from my parents.
Some teachers made fun of me to my face. Others called me lazy. I was accused of not trying or being stupid.
Starting in fourth grade, the school put me in special ed classes. But they put everyone with special needs in the same room. The teacher had to help one kid who was in a wheel chair, a different student who was mentally retarded, one who had behavior problems, and a small group of us in the corner who seemed to be “faking it” because we were bright and smart, but we could not figure out how to read, spell, write or do math.
We did not belong in a class with really handicapped kids. We needed help, but not the same type of help. Friends would ask, “What’s wrong with you? Why are you in the class with the handicapped kids?” I had to answer, “I don’t know.”
Needless to say, my childhood was not fun. I was beaten down mentally and physically.
Mrs. Barton, never stop doing what you are doing. Make sure no other kid has to go through what I went through.
Make sure everyone understands what dyslexia is, and how they can help kids through it.
Even teachers are frustrated
Once teachers or reading specialists learn about dyslexia, they start to realize how many of their struggling students have it. But when they try to share that with their fellow teachers or administrators, they often run into roadblocks – as this teacher shared.
Hi Susan,
I am a reading specialist at a public school in New York. We spoke briefly by phone a few months ago because I was concerned about my 4th and 5th grade students who are not making much progress.
I watched your videos, visited several websites, and read Sally Shaywitz’s book, Overcoming Dyslexia. I am convinced they have dyslexia.
But after I shared my concern with my principal and the other teachers, things at school have become a nightmare. I have been accused of making the teachers feel inferior when I share that many students need a different type of reading instruction. They claim to have years of teaching experience, and they know what they’re doing. Yet many of these students will be passed on to middle school still reading at a second grade level.
When I talk to the resource room teacher about dyslexia, he looks at me as if I have 3 heads.
I am no longer invited to student support meetings or IEP meetings.
I don’t know how to continue in the uphill battle. I know this is a lot to throw at you, but I really don’t know who else to turn to. I have sent my principal links to your videos, and I have summarized the findings of Overcoming Dyslexia. But everyone seems indifferent, and I am now perceived as a villain.
I know my students need more support. It hurts so much to see them suffer. I am committed to helping them reach their potential. But I feel so deflated and so stuck.
I need a plan for how to continue to advocate for them. I’d appreciate hearing your thoughts.


