Not eligible for special education
Many children with dyslexia will not be eligible for special education services – not even if a parent brings in a diagnostic report.
In that case, fight hard for classroom accommodations – and get the right type of help after school.
This parent did not do that – and regrets it.
Dyslexia runs in my family tree. My father, who is 60, can still remember being in second grade and having the teacher call him up to the front of the class to read out loud. The teacher would force him to stand there and “do it until you get it right” – despite him crying in front of the entire class.
I have a degree in Elementary Education, but we never had a single solitary course – not even a single lecture – on dyslexia.
Yet when my daughter struggled in kindergarten, her teacher suggested the possibility of dyslexia because:
- On DIBELS, she was not meeting benchmarks in nonsense word reading
- She had terrible spelling and could not retain her spelling words — not even the high frequency words like “some”
- She already had 2 years of speech therapy for R’s and L’s, but was not improving
- She constantly confused left and right
- And she still could not tie her shoes
At end of first grade, I asked the school to test her for a possible learning disability. The school said they wouldn’t test her until at least 3rd grade.
So during second grade, when she was not making progress in Tier 2 of RTI, I hired a highly qualified private professional to test her. She was diagnosed with moderate-to-severe dyslexia.
But when I shared that report with the school psychologist, he stated that dyslexia does not exist, that Susan Barton’s website was not a valid resource, and we could not even get a 504 Plan because he felt our daughter did not need it. He claimed she displayed no difficulties and would prove to be a good student.
Her teachers and even the principal were at that meeting, and they went along with the psychologist’s assessment – leaving us to wonder if we really knew what we were talking about.
We were so confused that we decided to follow the school’s advice — and regret it.
Our daughter is now at the end of third grade. Despite another year of phonics instruction and more RTI, she still struggles with spelling, sounding out longer words, and cannot comprehend her science textbook when she reads it herself. (But she has no trouble comprehending it when I read it TO her.)
The school did eventually test her, but her scores were not low enough to qualify for Special Ed services. And her report card grades are not too bad. She gets low B’s or C’s.
We have shown our daughter’s diagnostic report to other dyslexia professionals and organizations, and they have all agreed that she definitely does have dyslexia.
So what do I do now?
Sports
I get emails like this all the time, and they always bring me to tears.
When I heard you speak on Thursday, I cried. I wish I had that information when we began our journey.
My 17 year old son, David, is dyslexic. He was diagnosed when he was 8, and he has had lots of tutoring at Sylvan and from retired Reading Specialists over the years, which has helped a little bit.
David is a really smart, handsome, and well-liked young man. He hides his dyslexia well. Yet it is still there. After your presentation, I asked him, “What letter comes after S?” He quickly responded, “R.” I shared that was “before,” not after. He then said, “I know what you’re doing. Don’t even ask me about the months of the year.”
When he played PeeWee football, he always wore a wristband so he could tell left from right.
David recently gave directions to our house to his new girlfriend. But he frequently told her to turn left instead of right. After 45 frustrating minutes, he finally handed me the phone and begged, “Please get her here.”
He is a gifted athlete and would like to play football in college. But his grade point average is only 2.65 due to his failing French (a D) and algebra (also a D). He must also pass the ACT (college entrance exam). We paid for an ACT prep course, but after the course, he only scored 13. He needs at least a 17.
He needs extra time on the reading portion, and he dreads math. He was so nervous because he knew he was not going to have enough time to finish the test. How do I go about getting him more time on the ACT?
He feels he is not smart enough to make it in college. The many days of sitting in the hall, being put in “the dumb class” (as he called it), and being teased by his peers does not go away.
But I want him to be able to follow his dream. I do not want him to join the military, which is his backup plan.
Warning signs in adults
Since dyslexia is inherited, any adult who has dyslexia should watch for it in their children.
But adults with only mild or moderate dyslexia may not know they have it because they were never tested for it. But they will recognize these classic warning signs.
Lifelong trouble with spelling is one classic warning sign, as this college graduate shared:
Before the invention of the computer and “spell check,” it would take me forever to write a paper. I NEVER wrote letters to friends.
When I asked my mother how to spell a word, she would tell me to go look it up. How the heck can you look up a word if you don’t know how to spell it? I never did understand that. But my mother was a 1952 spelling bee champion, so she had no understanding of my difficulty.
I would spend HOURS going through all of the G’s trying to find the right spelling of jaguar.
Then an English teacher in college took me aside and asked, “Alice, you can’t spell, can you?” I sheepishly admitted I could not. He then asked me how I would spell jaguar. I replied that I wasn’t sure. He asked me if I could spell cat. I said yes. He then handed me a thesaurus and told me to look up cat. And there, under cat, was jaguar.
He then told me he never again wanted me to hand in a paper that was “dumbed down” because I couldn’t spell a word. He was the one who started the ball rolling to get me tested for dyslexia. I was 20 years old and in college.
Although it took forever to write papers, even with a thesaurus, I did get a college degree.
Another classic warning sign is being a very slow reader and having to guess to figure out the longer words – as this man shared:
At 78, I still struggle with dyslexia. Growing up in Tennessee in the 30’s and 40’s, I was viewed as dumb or lazy.
I may not seem as bad as others because I learned how to cheat, and how to avoid English and other courses that required lots of reading or writing. So I made good grades in college – graduating in the top 20% of my engineering class, and then getting an MBA.
But reading is still a lot of work.
And if you are a slow reader with terrible spelling, and you are also unable to master a foreign language, the odds are pretty high that you do have dyslexia – as this woman shared:
My brother’s kindergarten teacher suspected he might have dyslexia, but it took 2 years before he was diagnosed with severe dyslexia.
When I was 12, I attended a Susan Barton presentation on dyslexia with my parents. During her lecture, I realized I was also dyslexic – but I did not struggle as much as my brother. I was just a slow reader and a terrible speller.
It was not until I had to take a foreign language class in college, and failed every language I tried, that my parents finally realized I might also have dyslexia, and had me tested.
If you know or suspect that you have dyslexia, please watch for it in your children – because it is an inherited condition. Not all of them will have it, but about half of them will.