Not eligible for special education
Many children with dyslexia will not be eligible for special education services – not even if a parent brings in a diagnostic report.
In that case, fight hard for classroom accommodations – and get the right type of help after school.
This parent did not do that – and regrets it.
Dyslexia runs in my family tree. My father, who is 60, can still remember being in second grade and having the teacher call him up to the front of the class to read out loud. The teacher would force him to stand there and “do it until you get it right” – despite him crying in front of the entire class.
I have a degree in Elementary Education, but we never had a single solitary course – not even a single lecture – on dyslexia.
Yet when my daughter struggled in kindergarten, her teacher suggested the possibility of dyslexia because:
- On DIBELS, she was not meeting benchmarks in nonsense word reading
- She had terrible spelling and could not retain her spelling words — not even the high frequency words like “some”
- She already had 2 years of speech therapy for R’s and L’s, but was not improving
- She constantly confused left and right
- And she still could not tie her shoes
At end of first grade, I asked the school to test her for a possible learning disability. The school said they wouldn’t test her until at least 3rd grade.
So during second grade, when she was not making progress in Tier 2 of RTI, I hired a highly qualified private professional to test her. She was diagnosed with moderate-to-severe dyslexia.
But when I shared that report with the school psychologist, he stated that dyslexia does not exist, that Susan Barton’s website was not a valid resource, and we could not even get a 504 Plan because he felt our daughter did not need it. He claimed she displayed no difficulties and would prove to be a good student.
Her teachers and even the principal were at that meeting, and they went along with the psychologist’s assessment – leaving us to wonder if we really knew what we were talking about.
We were so confused that we decided to follow the school’s advice — and regret it.
Our daughter is now at the end of third grade. Despite another year of phonics instruction and more RTI, she still struggles with spelling, sounding out longer words, and cannot comprehend her science textbook when she reads it herself. (But she has no trouble comprehending it when I read it TO her.)
The school did eventually test her, but her scores were not low enough to qualify for Special Ed services. And her report card grades are not too bad. She gets low B’s or C’s.
We have shown our daughter’s diagnostic report to other dyslexia professionals and organizations, and they have all agreed that she definitely does have dyslexia.
So what do I do now?
Dyslexia runs in family trees
Dyslexia is genetic. It runs in family trees. So if you see the warning signs in your child, you may also start to identify other people in your family who have it, as this parent shared.
I just watched your on-line video which had so many “ah-ha” moments in it. You might as well have used our son’s name, Sam. Sam has every symptom you described. I feel like you know him personally, and finally, there is someone who understands him.
I have to give credit to his reading tutor, as she is the one who warned us that he “may” have dyslexia.
I now understand my mother better. She’s one of those who gets tongue tied when saying multi-syllable words, hates to write (and no one can read her handwriting), is a terrible speller, skips over the big words when reading, did not learn to talk until age 3, struggled in school – even though she is a very bright and creative person who thinks outside the box, gets lost easily, cannot remember left from right, and the list goes on and on.
And I think I have a mild case of it as well. It bothered me that I was always in the lowest reading group in my class, and that I had to re-read things 2 or 3 or 4 times to understand them.
I even took a speed reading course in high school to try to improve my ACT college prep results – because there was such a big difference between my reading test score and all of my other scores. But the speed reading course did not help my reading score at all. Now I know why.
To watch that dyslexia video, click on this link:
http://www.dys-add.com/videos/dyslexiaSymptomsSolutions_Part01.html
The problem with “Third Grade Guarantee” laws
Many states have recently passed, or are working on, a “Third Grade Guarantee” law, which includes mandatory retention for third graders who do NOT pass the reading portion of the end-of-year statewide exam.
Pam Collier, a parent in Ohio, gave me permission to share her email that explains why that law is as bad for students withOUT dyslexia as it is for those who do have dyslexia.
From: Pam Collier
Date: August 19, 2014
Subject: Third grade guaranteeDear Superintendent of Public Instruction at the Ohio Department of Education:
I am writing out of concern for my three children and Ohio’s Third Grade Guarantee. I have three very different children, and the guarantee will effect each of them differently.
First, I have a 10 year old daughter who is accelerated. She has tested in the gifted range on her Terra Nova, and has scored well above the cutoff of the guarantee scoring — in the Accelerated range for math and reading.
Now you are probably wondering how the guarantee could have any effects on this student. Actually, it has had a huge impact. My daughter spent her entire third grade year being “taught to the test.”
Teachers are terrified of poor test scores which negatively impact their evaluations. Instead of challenging bright young minds, the system is telling these students, “We don’t care whether you have a special gift. We just need you to do well on this test.”
My daughter was afraid of failing the test because teachers are creating so much anxiety and placing way too much pressure on our students.
Now, I have a second daughter who is a twin. She is 7 years old. Because she is a twin, I started to notice differences in her learning very early. At the age of 4, I began asking if she was dyslexic, citing she was having trouble remembering letters, numbers, rhyming, etc. I was assured that she was fine, and that her twin (my son) was just advanced.
Fast forward to kindergarten, and first grade. I asked the same questions.
In my gut, I knew I had to do something. So I pursued outside professional testing for my daughter. She was diagnosed with dyslexia, attention deficit disorder, and a visual processing disorder.
We tried getting help through the school on several occasions, and were told, “We don’t do one-on-one tutoring, we don’t have the funds for that, we don’t have anyone trained to provide the remediation your daughter needs.” So I hired an Orton Gillingham tutor who was recommended by the International Dyslexia Association.
Now, because she is not on an IEP, she is not exempt from the guarantee. Not exempt!
A child with dyslexia, a visual processing disorder, and attention deficit disorder is not exempt from retention because of a single test? A child whose parents are paying over $5,000 a year to a private tutor because her public school cannot meet her needs? A child who was not identified by the school, but was identified because her parents paid for private testing?
A child who works 5 times as hard as a student without dyslexia to learn, who is also working outside of school with a private tutor, may be retained because of a single score on a single test on a single day, in a single year?
Now, mind you, if she should fail and be retained, the state has mandated that she receive remediation “from a qualified instructor, trained in the remediation of students with a disability in reading, from a program that is approved by the state board of education.” This, from the same school system that said, “We don’t have the time, funds, or individuals with training to help your daughter.”
The same school system that told my husband and I that our goals “were too high” for our daughter. Our goals were that she meet the same benchmark as her non-disabled peers by the end of her second grade year. Our goals were too high? That is what we were told. We are being told that we should not hold our daughter by the same standards due to her disability, yet she will be held to the same standard when taking the OAA.
The Third Grade Guarantee is not serving our children’s needs. Research has shown that retention will lead to higher dropout rates. Teaching to the test is devaluing our greatest young minds. We need to have teachers who can challenge our most gifted students, and specialists who can remediate our students with learning disabilities.
We are doing the very best we can for our daughter. My husband and I are both professionals, and we know what is working for her. What recourse will we have if our bright daughter with dyslexia, a visual processing disorder, and attention deficit disorder, fails the OAA? She will get held back for what purpose? To receive the “extensive remediation” she is already receiving privately?
Why is it a mandate to retain some of our brightest individuals based on a single test?
Why are charter schools not held to the same standards?
Why do public school students have to undergo more than a dozen standardized tests, while private school students do not?
When will educators from the Ohio Department of Education realize that retention is not the answer?
Sincerely,
Pamela Collier
Which is worse?
If you struggled in school, going back to college as an adult is scary. But it is even worse to watch your child or grandchild struggle in school the same way you did – as this grandmother shares.
I am 57 years old with a BSN in nursing. After 30 years of being out of school, I am applying to graduate school for a MSN in nursing. I am terrified.
My early school years were just horrible. No one knew what to do with me, so they just passed me through each year.
I had to attend summer school EVERY summer. I hated it.
I grew up thinking I was just stupid and that I must be lazy because it took so much time to read, study and retain information.
In high school, I worked so hard to get good grades. I would read a chapter (of course, that took forever), then I would go back and outline the chapter and write it down in my notebook (that also took forever), and then I would reread it every night.
I did not know that everyone did not have to do that.
I am embarrassed to tell you how long it took me to learn the alphabet or the multiplication tables.
Spell check is my godsend, but you’re right. It often does not work for me.
You’re also right about having to write a hand-written letter. It makes me sweat!
I am pretty sure my seven year old granddaughter has dyslexia. I see myself in her. She is struggling with reading in school and is starting to say that she hates school.
I will do anything to prevent her from going through the torture that I went through as a child.
Susan replied with:
If your granddaughter gets the right type of tutoring now — every day during the summer, and at least twice a week next school year – her reading will greatly improve. And her spelling and writing will also get better.
I will send you some tricks for learning math facts.
Until her skills reach grade level, her parents should provide 3 accommodations during homework time, and her teacher should provide some in class, as well.
If that happens, your granddaughter will NOT go through the same “torture” in school that you did.
As a Teacher and a Mother
This long post is worth reading — especially with school starting in just one month.
Dear Susan,
My husband and three children have dyslexia.
I also teach at the local public school. Recently, during a lunch break in the staff lounge, a high school teacher shared that when she has to teach reading to her students, she has them read “baby books.” When the students ask why, she tells them, “Because you did not learn to read when you were supposed to.”
At that point I left the room, and cried. I was so hurt by what she said. At the time I could not talk about it without crying. (I still can’t). So I wrote this letter. Please share it in your book.
Dear Colleague,
What an inspiring discussion the teachers were having at lunch today. I enjoyed hearing about, and sharing, how hard our students have been working. I am not sure if you noticed, but there came a point when I stopped talking. Probably not, since there was so much going on in the staff lounge. I would like to share with you the reason that I shut down.
You began talking about one of your students. You shared your frustration that she is not reading at grade level. You said her atrocious writing is filled with spelling errors of simple words, like they and does, which she spells t-h-a-y and d-o-s-e. There are no capitals at the beginning of her sentences, and rarely is there any punctuation. Her handwriting is so sloppy that you can barely make out the words that she somehow managed to spell correctly. On top of that, she does not know her basic math facts and can’t get through a majority of the problems you assign, despite the fact that you just spent an hour teaching that lesson to the class.
You wondered why her parents did not care enough to work with her nightly. Surely her spelling and math would improve if they would just make her practice every night. You mentioned how lazy she is, how she could care less about the quality of her work, and how she puts forth zero effort towards improving.
You claimed you had tried everything and you do not know what to do with her anymore, so you will probably just end up passing her to the next grade level like all the other teachers have done.
Believe me, I understand your frustrations. It is difficult working with students like this. If they would just try harder, they would improve. Right?
I would like to introduce you to my daughter. She is excited to be entering high school this year. She is beautiful, polite, responsible, funny, caring . . . I could go on and on.
She participates in 4-H and showed her pig this year at the fair. She made over seven hundred dollars. She put some of the money into her savings account. Some will be used to purchase her next pig, and she can’t wait to go shopping and buy her own school clothes and school supplies with the remaining money.
She also participates in gymnastics, which she started when she was 18 months old.
When children are around her, they gravitate towards her. She loves to take care of babies and toddlers.
She enjoys preparing delicious food for others. Perhaps you would like to come to our home one evening. She will prepare her Pizza Chicken for dinner and Gelato for desert. She really is a great teenager.
Yet my daughter is scared and anxious about starting high school this year. She has dyslexia, and as a result, she is not reading at grade level. Her creative writing is filled with spelling errors of simple words, like they and does, which she spells t-h-a-y and d-o-s-e. There are no capitals at the beginning of her sentences, and rarely is there any punctuation. Her handwriting on school work is so sloppy because she does not want her teachers and classmates to see that she has trouble spelling.
On top of that, she does not know her basic math facts and can’t get through a majority of the problems assigned to her, even though her teacher just spent an hour teaching the lesson.
You wonder why her parents do not care enough to work with her nightly. Surely her spelling and math would improve if they would just make her practice every night.
I love my daughter more than you can imagine. But I no longer force her to practice math flashcards or to write the weekly spelling words over and over every night. I know it will not help her. She will be able to memorize them temporarily, but believe me, she will not remember them the next day.
I know that she puts her brain to the test every day by concentrating so much that it often makes her feel sick. I know that she has put herself down all day long while in school and that she needs to build herself back up at night, so she can go through the same ordeal the next day.
Those are the reasons I no longer fight the “homework wars” every night. Instead, I enjoy the evening with my daughter as she cares for her pigs and rabbits, and as she does front handsprings across the yard.
Children do not want to, or choose to, have dyslexia. They want to learn. They are very frustrated that they can not learn to read like their classmates, that their spelling never seems to turn out right, that they can not memorize their math facts, and that they get lost in multiple step math problems. They can not try any harder than they already do because their brain will not let them.
As a teacher, I understand your frustrations. It is difficult working with students like this. I regret having made some of the same comments as you in the past. I never imagined that I would be the mother of a child with a learning disability. After all, I am a teacher.
As a mother, I am begging you to hang in there and not give up on your students, because if you do, you will be giving up on my daughter. They need you.
So please, let me be the mother who loves my daughter and encourages her to discover all she is capable of, and you be the teacher that encourages her and allows her to show what she is capable of.
Sincerely,
A Mother who is also a School Teacher




