What a great teacher
This heartwarming email from a parent made my day.[audio https://susanbartondyslexiastories.com/wp-content/uploads/2013/01/what-a-great-teacher.mp3]
I want to share something amazing about my son who was recently diagnosed with dyslexia.
This morning his teacher stopped me to tell me what an intuitive student he was. She said his character is well beyond his years and that it never wavers. She also said he is such a beneficial member of his class because of his compassion and ability to self reflect, and that he has basically set the standard for the class with his global “out of the box” thinking.
When my son was recently diagnosed with dyslexia, I did a lot of research. I found the information on your website about the strengths of dyslexics. That teacher was mentioning many of those strengths.
So I was beaming with pride when I told her of his diagnosis.
Thank you for sharing how children with dyslexia are special. It was nice to hear confirmation of what I have always thought of my son — and I now know why he is so special. He’s dyslexic.
It is never too late
The following adult had received one year of Barton tutoring when she wrote this letter to Oprah (with the help of her tutor) to try to convince Oprah to do a show on dyslexia.
Dear Oprah:
I am 76 years old today.
I spent the first 75 years of my life wondering why I could not read or spell as well as other friends and family. I didn’t know why I had such a hard time finding the right word when I spoke, or why I couldn’t say the words correctly when I could retrieve them.
I didn’t know why I so often got lost in cities I had lived in for years, or why I still had to stop and think for a moment before I knew my right from my left. I didn’t know why I had such trouble memorizing things that seemed so easy for others.
Or why someone like me – someone who has started and run two businesses – could still not read well, or spell correctly enough to take a message and then be able to read it afterwards.
I didn’t know that I had severe-to-profound dyslexia.
For 75 years I prayed for God to help me. Last fall, I prayed again – that God would please, PLEASE, send me someone who could teach me how to spell.
The very next day, I ‘just so happened’ to sit next to a Dyslexia Specialist at a local event, and we ‘just so happened’ to strike up a conversation about what she does for a living. She ‘just so happened’ to tell me about the signs and symptoms of dyslexia, and I immediately recognized them in me.
Best of all, she ‘just so happened’ to tell me that there are solutions! That people who have struggled with dyslexia, for even 75 years, could still learn to read, write and spell! I made an appointment for her to test me. I cried when she told me that I had dyslexia. They were not tears of sadness, however. They were happy tears! Tears of joy! I finally had an answer!
I have been receiving the right kind of tutoring, twice a week, for a year.
I read the word authentic for the first time last month. I can now spell words that I could not even say before. I am 75 years old. Believe me – there is hope.
I have been thinking back on my 75 years. I thought of the very worst time in my life – the time when my daughter died.
Then I thought of the very best time in my life – it was the time I realized I could learn how to spell! When I finally, finally, realized what my life’s problem was. I am dyslexic.
Dyslexia still haunts me
When adults share the emotional pain caused by dyslexia, and how it continues to impact them even as adults, it will give you the anger and courage needed to fight hard for laws that require early screening and early intervention.
I’m 23 years old now, and I barely graduated from high school. My fiancee and I just watched your dyslexia video, and the story you told about your nephew Ben made me cry. It brought back many painful memories. I am like Ben, but unlike Ben, I never got the right help. I would like to tell you my story, and then I’d like to ask you a few questions.
In kindergarten, I had to walk home. It was only about three or four blocks, but I would often get lost. Also, I still remember getting criticized by my teachers, classmates, and even my own parents when I was falling behind in reciting my ABC’s, my 1-10’s, and even my phone number and address.
They almost retained me in Kindergarten, but my mother talked them out of it.
In first grade, I started to learn to read, but again, I was falling behind. All the way through school, I feared my turn to read in class. It’s funny how good memories are sometimes forgotten, but bad memories never go away. When I was trying to learn to read, I can still remember my father telling me that I was lazy, and I just wasn’t trying. I guess my tears and frustration weren’t enough proof for him to see how hard I really was trying.
When I finally got tested for dyslexia in 3rd grade, they put me into “Special Ed.” If you ask a child what Special Ed means, they will probably say “retarded.” That’s what my peers called me, and that’s what I thought I was.
My parents sent me to many programs, and spent a lot of money. Yet I’ve held a grudge against my parents for years; I felt they failed me and didn’t try hard enough to get the right type of help. That’s because after years of “help,” I was still the same.
I struggled all the way through high school and barely graduated. In my junior year, the state created a High School Graduation Exam. In order to graduate, you had to pass 3 tests: reading, writing, and math. You could take them 3 times, but if you don’t pass by the end of high school, you only got an “Attendance” certificate. The first time I took it, I somehow passed the reading test. But I failed math and writing.
To this day, I can’t do math. I still mess up on simple things such as adding and subtracting. I still don’t know my multiplication tables. I’ve tried to learn them for years, but I just can’t remember them. I’ll have all the fours mastered one night, but when I try them again the next day, I’ll only remember a few of them. By the following day, I won’t remember any of them.
So I switched to a vocational high school where you could take construction electricity to earn math credits. In that hands-on class, I was a super star.
But I still could not pass the math portion of the high school exit exam — or the writing part, which you had to do by hand and they graded it on spelling, punctuation, and neatness of handwriting.
Fortunately, many parents in the district (whose kids could not pass the test) fought the district and got them to withdraw the test. So I did graduate after all — with a D average.
After high school, I went from job to job, but I wasn’t happy. I needed a skill, so I turned to the military. I took the ASVAB for the Coast Guard, and once again, I almost failed it. But I scored just high enough to get into a mechanics position.
But Basic Training was a nightmare. I could not memorize and retain information, marching left versus right was almost impossible, and I still could not write down anything. In the end I had a mental breakdown, and got discharged.
That was two years ago, and since then, I’ve been going from one job I hated to the next.
But last January, my finance gave me an ultimatum. “Go back to school and try, or I’m going to leave you.”
So I’m back in school in the diesel mechanics program.
Although the Disabilities Office has provided some software, more time on tests, and a note taker for each of my classes, they are not teaching me how to overcome my dyslexia.
I still can’t spell, do multiplication (or most other math), memorize anything, tell my left from my right, or find my errors when I write. I even make mistakes when filling out a job application.
Yet there is so much I can do. Right now, I work as an assistant maintenance person at the fire department, and I’m good. Really good. I can fix just about anything.
Yet that’s not what this world wants.
I want help to overcome my dyslexia so badly. I will try anything. I just want to be like everyone around me.
If it’s too late for me, then I need to know what to do to help my children when I have them. I do not want them to feel like I do now.
Hopeless, helpless, and sad.
Labels
Some teachers and parents do not want to ‘label’ a child as dyslexic. But I feel that decision does much more harm than good. Here’s why.
One parent shared:
My husband is a medical doctor who told me, “In medicine, it is extremely rare for a patient to have 6 or 7 different conditions or diseases at the same time. So we start to search for 1 root cause that would create their many different symptoms.”
Yet the root cause of my son’s many academic problems, dyslexia, is a word that doesn’t see the light of day a lot. I have heard teachers and administrators claim, “There is no such thing,” or “We don’t like to ‘label’ children.”
But claiming dyslexia does not exist will not make it go away. You are just sentencing a child and their family to years of uncomprehending frustration.
Going back to the one root cause creating many symptoms:
What would a doctor say to a person who has the following symptoms: unusual weight loss, irritability, blurry vision, is tired all the time, is experiencing frequent urination, and often feels hungry?
Would he tell that person to drink more, eat more, put on weight and see an optician?
No. A doctor would say “Hmmm, that sounds a lot like diabetes. Let’s get you tested. If the test is positive, we can create a treatment program that works for you, and we can enable you to live a healthy and productive life.”
Do you see? I love labels, I love them! Once you have a label, you know what you are dealing with, you can talk to others about it, and you can seek help and find support.
I would far rather have one label that I can understand than a whole stack of symptoms that I don’t.
This parent agrees:
I have found many parents worry about labeling their child as dyslexic — and therefore, do not pursue testing.
We have found “dyslexia” to be a much better label than “lazy,” or “stubborn,” or “uncooperative.”
My son blossomed once he understood why reading and writing did not come easily for him, and that he could improve through tutoring.
Children may choose a far worse label, as this adult shares:
I’m 35 and have struggled with dyslexia my entire life, but I didn’t have a name for it. So I created my own name for it…DUMB.
Then I had to watch my little boy (who is now 17) go through the very same struggles in school. I told him every day (and still do) that he is smart. But if you don’t feel it, and your grades don’t reflect it, and you fail 3rd grade, nothing translates to SMART.
Today, we both know we have dyslexia, but it’s so hard to erase the old label of “dumb.”
Another parent shared:
Everyone told me that testing my son would insult and depress him — and categorize him — and be a waste of our money. For years, I believed that, which made my child virtually HATE me because I did not understand who he was, and HE knew something was ‘wrong.’
Once we got a diagnosis of ADHD and severe dyslexia, I saw all the weight lift off his shoulders. It’s like a light came on.
We began to work along side each other with the right homeschool materials, and I have seen a complete turnaround in his behavior, emotions, and learning.
It has also given him compassion for others.
Even homeschooled children need to know, as this parent shares:
I have to admit that I’ve always known something was wrong with my daughter, who is now 17. We tried so many approaches (colored overlays, physical exercises, and so many different phonics programs), but I never had her tested because I didn’t want to label her.
Thanks to homeschooling, I’ve been able to provide accommodations that match her needs. I’ve read aloud to her almost daily, so she has a great oral vocabulary. I record all of her textbooks, which she then listens to while following along.
I have her dictate most of her written work to me. We’ve been doing that since she was in 2nd grade.
But now that she’s approaching graduation and wants to go on to college, she needs to be more independent.
After watching your video, I decided to share my suspicions with my daughter. She cried when we went over the list of symptoms. She said for the first time, she realized that she wasn’t alone. She felt normal. She said it was so freeing to hear all of those things and to realize it wasn’t just “her” problem. She and I even joked that she could be the poster child for dyslexia.
To my surprise, she does not feel labeled. She feels hopeful.
So, parents, please share the correct label with your child: dyslexia — not “dumb” or “lazy” or “stubborn.”
The problem with RTI
Many children with dyslexia will not qualify for special education services during their early school years. But these days, they almost always get put into Tier 2 or Tier 3 of RTI.
One problem with RTI is how they measure “improvement,” as this mother shares:
I am the mother of an 9 year old boy. I want him tested for dyslexia. But the school says they don’t do dyslexia testing.
Instead, they gave him a test to determine if he needed special education services. But he passed the assessments and the IQ part, so they dropped it. They concluded he was just immature for his age and recommended retaining him, which we did.
Yet he still reads below grade level. At the beginning of his second time through 2nd grade, he was reading at a beginning first grade level. We are now at the end of the year, and his reading has only improve by 3 months — to a middle of first grade level.
To me, he should have improved more, given that he has had an entire extra year of PALS plus Tier 2 of RTI. Yet the school claims because he improved, he will not continue to get RTI next year.
Parents, never accept “some” improvement as good enough. If your child is not making more than one year of gain in one year of intervention, the gap is not closing. It’s getting bigger.
Another problem with RTI is that the right intervention is stopped too soon — before a student has finished the intervention program, as happened to this student:
I have been concerned about my son since kindergarten, and I have fought every year to have the school test him for a possible learning disability or dyslexia.
The school finally tested him in second grade, and although it showed some struggles, they said his scores were not bad enough to classify him as having a learning disability. Yet he struggled significantly with reading (he could not sound out any real or nonsense words — and messed up the vowels), read very slowly, and had terrible spelling.
His handwriting was so poor that I hired a private OT to work with him during third grade.
In fourth grade, he was put into Tier 2 of their RTI program. He began to get small group instruction using the Wilson Reading System, which is when he finally began to enjoy reading. Yet at the end of the year, because he had improved, he no longer qualified for RTI.
Our son is now 11 and in the middle of 6th grade at a junior high school. Although he will read if we push him hard, he refuses to read out loud any more (and he does have to read a passage several times before he comprehends it), his spelling continues to be horrible (even the simple high frequency words), and he struggles in math because he still does not know his multiplication tables.
Despite that, believe it or not, he has mostly B’s and A’s on his report card.
Yet he now resists all attempts to help him, and he has emotionally shut down.
We fear that as the demands of school increase, he will not be able to survive the challenges.
Parents, if you know or suspect your child has dyslexia but their school is not (or is no longer) providing the right type of intervention, then get it for them after school . . . by either hiring a tutor who uses an Orton-Gillingham based system or by getting the Barton Reading & Spelling System and tutoring your own child.
Warn the parents
If you combine the emails I get from teachers with those I get from parents, you can see why so many students with dyslexia drop out of high school.
A caring teacher asked:
I am a first-year 3rd grade teacher.
I have one student in my classroom who is very bright. She does extremely well in all of her subjects, except reading and spelling. Her spelling is atrocious, and so is her handwriting. When she writes the required sentences each week, her sentence structure and words are simplistic and not at all similar to how she speaks.
When reading aloud, she runs over punctuation marks, and she doesn’t even try to sound out unknown words. Even when I help her and eventually tell her the word, she will often not know that very same word when it appears again a page or two later.
Parent-teacher conferences are coming up, and I was wondering if I should warn her parents about the possibility of dyslexia.
Yes, if you suspect a child may have dyslexia PLEASE mention it to their parents. They know their child is struggling because they fight the nightly “homework wars.”
If dyslexia is not discovered and dealt with during those early grades, teachers in junior high often complain:
I cannot thank you enough for your wonderful presentation I attended about 2 weeks ago at my school. I was moved to tears and then later, I became quite angry!
I am a teacher at the school that hosted your presentation. I teach 7th grade English Language Arts, and I’ve been searching for an answer to this question for years by going to conferences, holding discussions with my colleagues, and asking administrators: “What do I do with the students who read at the 2nd grade level in 7th grade?”
I will never understand our approach to education. How can it be that effective reading systems exist, we do not employ them, and yet we are expected to raise their scores and close the gap? (And we call ourselves educators.)
How much longer are we going to allow this farce to continue?
But the real tragedy is what happens to these children in high school. Their parents send me heart-breaking emails, like the following:
My son has dyslexia, he’s 17, and I don’t know what to do.
He can barely read, he can’t spell, and his special education teacher isn’t helping. He’s slipping away, yet he really is a good kid.
He is giving up. He wants to drop out of high school.
Help. I’m desperate!
Or:
I am dyslexic, but I did not know it until my 6 year old son was diagnosed with it. I suspect 2 of my other children also have it, and ADD as well.
My oldest is 16, and he’s the one I am most concerned about.
The school has always labeled him a “problem kid.” Over the years, I tried everything the teachers suggested. But when their ideas did not work and I went back to them with my own suggestions, I became the enemy. Nothing I suggested was ever tried or accepted.
He is a junior in high school, but he only has the credits of a 9th grader — so he may not graduate. His teachers give up on him and just push him through. He has very low self-esteem, has been in a lot of trouble, and I just discovered he is starting to use drugs.
I feel like I have let him down. I worry that it is too late to help him. What can I do now?
Or:
My nephew, who is 20, has dyslexia but never knew it. School was so awful for him that he dropped out.
He tried to get his GED through a local college program, but it was way over his head. One of the teachers called him “stupid,” so now he will not go back. That is the last thing he needed — as he already had very poor self-esteem.
He has always wanted to be an engineer, but he says he is too stupid to be that — or anything else in life.
I want to help him. If I don’t, he may never be able to get a job, and he will live at home with his mom forever.
All of that pain is preventable if teachers would warn parents when a student shows many of the classic early warning signs of dyslexia, and if parents then got their child the right type of tutoring.
Bright Solutions for Dyslexia 