Tag Archives: 1st Grade

Dyslexia still haunts me

When adults share the emotional pain caused by dyslexia, and how it continues to impact them even as adults, it will give you the anger and courage needed to fight hard for laws that require early screening and early intervention.

I’m 23 years old now, and I barely graduated from high school. My fiancee and I just watched your dyslexia video, and the story you told about your nephew Ben made me cry. It brought back many painful memories. I am like Ben, but unlike Ben, I never got the right help. I would like to tell you my story, and then I’d like to ask you a few questions.

In kindergarten, I had to walk home. It was only about three or four blocks, but I would often get lost. Also, I still remember getting criticized by my teachers, classmates, and even my own parents when I was falling behind in reciting my ABC’s, my 1-10’s, and even my phone number and address.

They almost retained me in Kindergarten, but my mother talked them out of it.

In first grade, I started to learn to read, but again, I was falling behind. All the way through school, I feared my turn to read in class. It’s funny how good memories are sometimes forgotten, but bad memories never go away. When I was trying to learn to read, I can still remember my father telling me that I was lazy, and I just wasn’t trying. I guess my tears and frustration weren’t enough proof for him to see how hard I really was trying.

When I finally got tested for dyslexia in 3rd grade, they put me into “Special Ed.” If you ask a child what Special Ed means, they will probably say “retarded.” That’s what my peers called me, and that’s what I thought I was.

My parents sent me to many programs, and spent a lot of money. Yet I’ve held a grudge against my parents for years; I felt they failed me and didn’t try hard enough to get the right type of help. That’s because after years of “help,” I was still the same.

I struggled all the way through high school and barely graduated. In my junior year, the state created a High School Graduation Exam. In order to graduate, you had to pass 3 tests: reading, writing, and math. You could take them 3 times, but if you don’t pass by the end of high school, you only got an “Attendance” certificate. The first time I took it, I somehow passed the reading test. But I failed math and writing.

To this day, I can’t do math. I still mess up on simple things such as adding and subtracting. I still don’t know my multiplication tables. I’ve tried to learn them for years, but I just can’t remember them. I’ll have all the fours mastered one night, but when I try them again the next day, I’ll only remember a few of them. By the following day, I won’t remember any of them.

So I switched to a vocational high school where you could  take construction electricity to earn math credits. In that hands-on class, I was a super star.

But I still could not pass the math portion of the high school exit exam — or the writing part, which you had to do by hand and they graded it on spelling, punctuation, and neatness of handwriting.

Fortunately, many parents in the district (whose kids could not pass the test) fought the district and got them to withdraw the test. So I did graduate after all — with a D average.

After high school, I went from job to job, but I wasn’t happy. I needed a skill, so I turned to the military. I took the ASVAB for the Coast Guard, and once again, I almost failed it. But I scored just high enough to get into a mechanics position.

But Basic Training was a nightmare. I could not memorize and retain information, marching left versus right was almost impossible, and I still could not write down anything. In the end I had a mental breakdown, and got discharged.

That was two years ago, and since then, I’ve been going from one job I hated to the next.

But last January, my finance gave me an ultimatum. “Go back to school and try, or I’m going to leave you.”

So I’m back in school in the diesel mechanics program.

Although the Disabilities Office has provided some software, more time on tests, and a note taker for each of my classes, they are not teaching me how to overcome my dyslexia.

I still can’t spell, do multiplication (or most other math), memorize anything, tell my left from my right, or find my errors when I write. I even make mistakes when filling out a job application.

Yet there is so much I can do. Right now, I work as an assistant maintenance person at the fire department, and I’m good. Really good. I can fix just about anything.

Yet that’s not what this world wants.

I want help to overcome my dyslexia so badly. I will try anything. I just want to be like everyone around me.

If it’s too late for me, then I need to know what to do to help my children when I have them. I do not want them to feel like I do now.

Hopeless, helpless, and sad.

Tell the teachers

I received the following email from a Dyslexia Specialist who is also a Certified Barton tutor.

I am giving an inservice on dyslexia today, so I had to cancel one of my student’s tutoring sessions.

When the child asked me what I was going to be doing, I explained. My student asked if he could give a message to the teachers. I said, “Sure.”

His response was so poignant that I asked a few others this week if they had anything they wanted to say as well. I was surprised just how many had something they wanted to get off their chests!

Below is a sampling of just a few.

JEFFREY, first grade:
If you are going to teach me the way I can’t learn, then I will not learn, and I will be mad and frustrated!

If you teach me the way I can learn, then I will try and try, and try, and try and try so hard, and I will never give up!

School with Logo

ANGELA, second grade:
I would like to tell teachers that struggling is hard.

If you don’t know how to teach me, then find someone who does.

And while they are teaching me, be nice to me! I am trying so hard and I need my teacher to understand that.

DAVID, second grade:
Give me more time to finish my work. I can’t work as fast as the other kids.

Even better would be if you gave me less work. I would still learn, and then I would have time to play.

LISA, ninth grade:
My teacher told the class that I have dyslexia so they would understand why I don’t want anybody else correcting my papers. Do you know what she told them? She said that I had trouble mixing up my Bs and Ds!

Is that really all she thinks dyslexia is? Don’t teachers want to know any more than that?

Tutoring is only half the answer

Parents ask why I often state that private schools (such as Montessori, Waldorf, Christian, Catholic or Jewish schools) can be better places for children with dyslexia than public schools.

Private schools often do not know any more about dyslexia than public schools, but they are much more willing to provide free simple classroom accommodations — which are as critical as the right type of tutoring.

A parent of a child in a public school recently sent me a BCC of this email that she sent to her child’s teacher.

Dear Mrs. Smith:

It is 1:45 a.m. and I am not sleeping . . . again.

I am frustrated and hoping for your help.

I waited a few days since Lynn’s IEP meeting before writing this.

I do not want to come off as unreasonable or angry. But I cannot help but feel like the last 2-3 months of the school’s assessments were a massive exercise in futility. I came into the IEP meeting assuming that we were finally going to get Lynn some help and put some modifications and accommodations in place.

Instead . . . well, you were there. We simply restated what had already been established 2 years ago: Lynn is a bright little girl who does not qualify for special education help. I get that. I got that 2 years ago. My question is: what next?

I have spent countless hours and thousands of dollars getting Lynn officially diagnosed. I am paying to have her tutored after school by a Certified Barton tutor. I just need a 504 Plan put into place so we can get some simple free classroom accommodations.

I have been requesting that since the first day of school. It is now March. March !!!

I am more than willing to do my part. I will redouble my efforts to find support outside of school. But how do we get some classroom accommodations?

Compare that to this email from a parent whose child attends a private Christian school.

My son was formally diagnosed with moderate dyslexia in third grade — after a teacher at his private Christian school suggested dyslexia might be the cause of his struggles.

Timmy has hated school with a passion ever since he started Kindergarten. He would wake up every day crying, banging his pillow, and begging not to go to school, saying the work was “just too hard.”

Daily homework assignments went on with hours, and I mean hours, with temper tantrums, constant tears, anger and frustration beyond the roof as I am sure you can imagine.

Before school, Timmy’s personality had always been quiet, content and a deep thinker. You can imagine my horror to see his wonderful demeanor turn into such anger and frustration as each school season progressed.

He had all the early signs of dyslexia, but of course, we never knew what we were looking at. He went through school as this very angry, frustrated child, until finally, his third grade teacher recognized a very obvious problem, and led us to what he so desperately needed.

I am so thankful that he goes to a private school.  Although legally, they do not have to provide accommodations or intervention, his school feels a moral obligation to provide both.

I am starting to see Timmy’s anger and frustration level drop as his reading and spelling is getting better, thanks to his Barton tutoring.

Homework time has become a million times better, thanks to the accommodations he is entitled to when needed.

His creativity is also flourishing. I am blown away by what he understands or creates out of his own observations.

He also has an amazing maturity well beyond his years, and his incredible insight to see and understand things is jaw dropping.

Parents, if your child’s public school refuses to provide accommodations, consider moving your child to a more flexible private school.

Dyslexia is inherited

Many people are still not aware that dyslexia is inherited. It strongly runs in family trees.

That lack of awareness causes this:

After 3 years of trying to figure out my daughter’s learning challenges, I am now convinced that she is dyslexic.

I am sick to my stomach that although I knew my husband is dyslexic, I never made the connection. I did not know it is an inherited condition.

My very bright daughter will be entering 6th grade soon, reading 3 years below her grade level.

And it causes this:

I am dyslexic my father was dyslexic my older son is dyslexic. could my 9 yr old son be dyslexic.

we have been trying to get an IEP sence frist grade (he in 3rd now) we where told unless he has failing grades for 2 consexative years no IEP.

i cant help him with his school work.

im afraid thay are pushing him through school and he will end up an out of control teen — like me.

Parents, if you know dyslexia runs in your family tree, and your second or third grader has terrible spelling when writing sentences and stories, and is a slow inaccurate reader who cannot easily sound out unknown words, take action now.

I just found your website today. I am the mom of a second grader and I think he may be dyslexic because my son’s father, aunt, and grandmother are all dyslexic.

I questioned his kindergarten and first grade teachers about dyslexia. Each teacher assured me he was age appropriate in his learning.

But towards the middle of first grade, he scored below the average on the DIBELS test and qualified for reading intervention. I signed him up for it, thinking it would help.

I also worked with him all summer in an attempt to get him up to the same level as his classmates.

Despite that, his second grade teacher expressed concern about his reading, writing, and spelling on his progress report.

So I took him to a center for an assessment. He scored low on phonemic awareness and fluency, but very high on comprehension. He puzzled the assessor because even though he did not read the passage very accurately, he was able to answer the comprehension questions. He also scored high in listening comprehension.

Yet reading, spelling, and writing are so exhausting to my child that it is painful to watch. He wants to read, he is motivated to read, but he isn’t reading the words. He does seem to know some sight words but he mostly scans the page looking for clues and guesses at reading.

I am very interested in learning how to teach my child. My background is not in teaching, but I am more than willing to work hard, and I am very motivated.

Wants a second opinion

Children with dyslexia will often NOT qualify for special education services when tested in first or second (or even third) grade. Yet as the following parent shared, the classic warning signs will already be there, and that’s exactly when a child should start getting the right type of tutoring. 

I am looking for someone who can give me a second opinion on test results of an evaluation done with my 7 year old son, who will be starting 2nd grade in 2 weeks.

First grade was a hard year for him – lots of tantrums and self-esteem problems. We could not figure out where all his anger was coming from until last December, when he started to fall behind in reading. In February it dawned on me that he might have dyslexia. I felt we needed an evaluation so we could start helping him effectively right away and not lose valuable years of reading training.

We had him privately evaluated by an educational psychologist to check for a learning disability because the public school said he was not doing poorly enough for them to do it.

The examiner found a “severe discrepancy” between reading achievement (23 %ile) and IQ (75 %ile), but he did not find a disorder in one or more of the basic psychological processes, which is why we did not receive a diagnosis of a learning disability.

He did test quite low in auditory processing (19 %ile). He actually scored even lower (at the 1 %ile) in the word discrimination subtest, but the examiner thought that might have been a fluke – because he scored so high in thinking and reasoning (91 %ile) and in the visual-spatial stuff (91 %ile).

The examiner felt my son was a very bright boy and that he would catch up in reading as he matured. He claimed his tantrums were just a cry for attention.

Despite that, my husband and I are still concerned. I really would like someone else to look at his scores for a second opinion because I have read several books and researched dyslexia online – and I see lots of the warning signs in my son.

Is it possible that he still could have dyslexia, but is not far enough behind in school yet to get a diagnosis?

I would really like his teacher to realize he is not being lazy or not paying attention.

I also want to be able to give my son a reason for his difficulties so he’ll know he’s not dumb. We have told him how smart he is, of course, but when he sees how well other kids are reading, he gets frustrated and feels stupid.

Take Action

Parents, when you see many of the early warning signs of dyslexia in your child, take action — as this parent finally did. 

Debbie has always been an extremely bright child.

She loved preschool, but not kindergarten. She had extreme trouble with sounds, particularly vowels. She could never do the worksheets where you have to fill in the vowel sound. We had her hearing tested, which was fine. I did Hooked on Phonics and every other phonics thing I could lay my hands on.

By the end of second grade, her reading had progressed somewhat (but was nothing like my older daughter’s reading). Debbie just couldn’t seem to pick it up, and she could not sound out anything. She skipped many words (even the small ones, like he, at, to, it), and I was confused when she said a totally different word than the one on the page (vacation instead of trip, frog instead of toad, etc.) She spent a lot of time looking at the pictures.

And she couldn’t spell at all. Her teachers said her inventive spelling was horrible, even though we worked on her spelling every night at home for at least an hour.

At the end of second grade, she became so anxious about school that we asked them to test her for a learning disability. They claimed she did not have one (only inattentive ADD). So we decided to homeschool to lower her anxiety.

I have worked with her intensely with many different reading programs during the past two years of homeschool. Reading exhausts her, and she starts making all kinds of dyslexic mistakes after reading for less than an minute or two.

One day this summer, we were discussing a short book we had read about wishes. I asked Debbie about her fondest wish. She looked at me and said, “To be able to read, Mama. REALLY read like Lisa can. I want to read big books, like Harry Potter. But I don’t think I will ever get that wish.”

Right after that, I made an appointment to have her tested privately for dyslexia.

By the way, she still can’t spell. Neither can my father. He is a well-respected professional in his field. He never reads books. And he has always used a dictaphone to compose letters because his spelling is horrific. In fact, at his retirement party, they gave him a plaque that had misspelled words all over it — as a joke.