Almost every parent I meet has gone through an experience like this:
Susan, I feel stuck, and I need some advice. My son is having a rough year in 5th grade. After reading some of the articles on your website, I am sure he has dyslexia.
He struggled so much in first grade that his teacher thought he had a Learning Disability. But the school said he was too young to test.
Over the years, he has made some improvement because he works hard, is a pleaser, and most of his teachers love him. In fact, he got straight A’s in 4th grade — with TONS of hard work.
But this year, he has had a one-two punch: a teacher who is not so great, plus he is hitting the “read-to-learn” wall.
I am getting nowhere with the school. They claim he tests “on level,” yet he got a D in Reading on his report card – which seems to alarm no one. When I went to his teacher with my suspicions of dyslexia, she said that in her 23 years of teaching, she had only known 1 kid with dyslexia.
The Principal (who has a background in Special Ed) said my son might have some decoding issues. So he set up a Child Study Team meeting. But t he team said he was too bright to need help.
I tried to tell them that my 5th grade son just now, finally, learned to tie his shoes (using his own wacky, two-loop method), he cannot name the months in order, and he cannot play a game like Apples to Apples where he has to sound out a word in isolation. So they had the reading specialist assess him. She indeed found some “decoding” issues. She sent home a first grade chunk-matching game. That’s it. I am dumbfounded.
I feel lost and alone with no way to help my son. I live in a town with TWO teaching universities, yet I cannot find anyone who tests for dyslexia, or any professional tutors who are certified in one of the good Orton-Gillingham based programs.
How do I advocate for my child in a school system that deems him too bright?
Since dyslexia affects 1 in 5 kids, I can’t be the only parent feeling so helpless – and so worried about middle school.